Below we have listed a few Hospitals who serve children by integrating medical care, preventive services, medical education and research. Please note there are many additional hospitals that provide the same excellence of care.
Childrens Hospital of Los Angeles
Lucile Packard Childrens Hospital at Stanford
Childrens Hospital Boston
Miami Childrens Hospital
RESOURCES
Education
Helen Taussig Children's Heart Center at Johns Hopkins University provides good animated color diagrams with basic information for parents.
http://www.pted.org/?id=list#1
Congenital Heart Defects
Information and resources for the CHD community including questions and comments, resources, messageboard, medical definitions, and more.
http://www.congenitalheartdefects.com/
California Heart Connection
Non-profit support network that provides information and resources to families with congenital heart defects. Also works with the medical community to share up-to-date information and generate public awareness to promote early detection of CHDs.
http://caheartconnection.homestead.com/
CHD H.E.A.R.T
Hope for MORE tomorrows! A touching site that is put out by parents of children with CHD and those interested in raising awareness of CHD, see videos.
http://www.myspace.com/chdheartfoundation
The Ronald McDonald House
Supports the health and well-being of children by providing a “home away from home” for families of seriously ill children who are receiving care in Southern California.
http://www.rmhcsc.org/
Additional Locations:
http://www.rmhc.com/
Caringbridge
Free, personalized websites that support and connect loved ones during critical illness, treatment and recovery.
Carepages
Share your story ~ build your support circle. Free patient blogs that connect friends and family during a health challenge.
Camp del Corazon
Non-profit organization dedicated to providing experiential program for children and families living with heart disease. All programs are offered free-of-charge and staffed completely by volunteer counselors, nurses and physicians of their hearts to help these special kids. Partners with the American Heart Association.
Songs of Love
A nonprofit organization that creates original personalized songs free of charge, for children and teens facing tough medical challenges.
Book
My Heart vs. the Real World: Children with Heart Disease, In Photographs & Interviews (Hardcover)
My Heart vs. the Real World is a photo documentary volume that explores the lives of children with congenital heart disease (CHD) through striking black-and-white photographs and interviews with subjects and their families.
http://www.amazon.com/Heart-vs-Real-World-Photographs/dp/0879697822/ref=pd_bbs_6?ie=UTF8&s=books&qid=1227139244&sr=8-6
